Saturday, December 10, 2011

Again, a very long time.

yeah, this might very quickly become the worst/ shortest book. My writing skills are nowhere near good enough to make this actually with reading.
Well, round four of Chemo will hopefully start on Monday, depending on my counts. My counts are the best they have been in a very long time! My magnesium is low, so they are taking away the cycplatin drug, which is the one that is killing my kidneys. My platelets are low, so if they are still low for tomorrows blood draw, I will most likely get a transfusion Monday. another blood draw Tuesday that has good enough results to start Chemo, (Thank the Lord for my port) Or this would be worse) I'm actually hoping that treatment starts Monday. My birthday is on Thursday and my friends will be home from school ( :D ) This treatment shouldn't be so bad on my kidneys so I will actually get to enjoy Christmas, and a quick trip to Branson before the year is out. Also, my friend Emily and I are planning a Birthday party for the two of us. I am happy that my counts will be good enough to get to do everything I want to get done before new years.
Things have been a little stressful this week. My 7 month old nephew is in the hospital with a double ear infection, influenza, and pneumonia with a pocket of infection around It. Poor baby port-man. Being that he is so sick, I can't go visit him. I feel like a really terrible Aunt but me heart is with sick baby boy. We get to watch Little Legs (Laney Rose) tonight. I am very excited to get to play with her. Shes goofy, always has me laughing, and Keeps me feeling young. (meaning we color, and watch animated movies together.)
Being an Aunt is so fun, im looking forward to my eldest sister and brother-in-law to have their first baby in April. Happy you finished treatment, new niece or nephew. I will actually get to watch this baby grow. I missed out on Portman getting big because of this whole brain cancer/ surgery thing. Its like he was just a little baby, and now hes a sweet giggly boy. SO SWEET. sitting up, rolling like a mad mad. laughing up a storm. And getting Big!!!! Our family is not used to havinv a boy around, so its been so nice. Something so differnt. Its fun ans I know my dad can't wait for him to be big enough to hang out in the shop wiith him. If he is anything like Little Legs, he will love spening time with his Mimi and Papa. For now he just loves eveyone equally.
besides a few family set backs, things are going well.. Mostly happy my counts have been good enouh, I got to go along to get all my christmas gifts, and started wrapping a storm yesterday. Tis' the season.
At my rate of writing, HAPPY HOLIDAYS AND HAPPY NEW YEAR!!!!!!!!!!!!

Thursday, November 3, 2011

Far to long....

I'm sorry for my slow posting, I've had the time, I just haven't been sure of what to write about. I ROCKED my first round of six. They told me I was going to be sick, and it was going to be intense, but I rocke it, the drugs really didn't bother me. The number one thing that bothered me was I accidentally came unhooked at one point, with a minor spill, my nurse had to legit siut up to clean it up, I had a problem with that because they where putting it into my body, awkward. Then following that, I had 2 MRIs, 1 round of chemo with my friend bec is tow!!!, 1 pet scan, and 3 doses of contrast. I found out my MRI, AND pet scan are CLEAR, meaning I am TUMOR and CANCER FREE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! that was about the only good from last week, I was a miserable fool. All of that messy contrast, and chemo did not mix well, and my kidneys did not enjoy it. I found myself back in the hospital on Friday. Cant say it was the best halloweeen, but I found the hospitals fish pond (thanks smith) and got to enjoy the final nice day in kc. Now we have two Monday's until we start round 2. Maybe I will tolerate this better and go to a 21 day cycle. I would love to skip my birthday and Christmas, but who knows what will happen, I can only hope for the best.

Monday, September 26, 2011

a weekend away..

Having 4 weeks off is great. Last weekend we went to Iowa and watched my rock star best friend rock at soccer, and this past weekend we went to Branson on Thursday and Friday. then on the weekend we went to Arkansas. Got to see my best friends and grandma. it was so fun. it was a was like a weekend out of my dreams. everything I love in one weekend. hay goods. Good Music. My best frends. and chicken nines. It seemed like a lot of driving but i was happy to have everything i love in a weekend. it all comes down to me getting to buy jeggins!! so happy!! They are the most comfortable things ever. Talk about the best ten dollars ever!!!! I want to wear them and legggings every single day. screw pants.
Next weekend we are going to camp Chihowa out by Lake Perry for a retreat in my name. Kyle and Clint are putting it together. guess im talking about brain cancer on saturday. I don't really know. but Sunday they are doing the Head For A Cure in lawerece in my name. so Mom is going to walk and i am going to cheer everyone on. Im actually super excited about it. It shold be good. and I may get to see my favorite nurse from the Cancer center. But who really knows. Its a good few weeks to have a break. I don't start my next round of chemo until October 17th. I get to watch Bec play soccer at Backer on the 8th. Im very excited. i have to have an MRI sometime, according to Dr. Pollock. Im mostly excited to see her. I like Dr. P a lot. and after I have this MRI ll get to see Dr. Wang and all the cool cats at radiation. im ver excited for the end of my break, because after my chemo (and 8 days) I basically get a 20 day break. the suck part of this all is that it falls right on my birthday. Im not pleased about that, but i will be on "break" for thanksgiving and Christmas. Thats a ver good thing.

Friday, September 16, 2011

a break...??

MY DEAR READERS!! As of Monday Septer 12, 2011 I AM DONE WITH RADIAION!!!! gah, so sad to see my therapists go, but beyond happy to be done . not only with the being trapped to a table thing, but the blood drws three times a week going away is pretty awesome too! We cant go back and visit/follow up appointment until I have an MRI. Dr. Wang (wong) wants to see it, review it. blah blah blah. Doctor stuff. I don't know.My wonderful parents took me to my favorite place in KC for dinner, Grunaure, ger me that German food!! pure love. it was awesome!

I then have had the week to just chill. without afternoon radiation im not sure what to do with my self. I have so much time now. i am getting school work done, and people are coming to visit. my neighbor came yesterday with a BEAUTIFUL hat she made for me. Her husband works at KU so she said he would come visit me on the peds floor when im there and he can. :) they also just had a baby. so cute. SHe's going to bring her over to visit someday. I can't wait! Seet babies.

This weekend I get to go to Iowa, with Kyle and Kristine, to see Becca. Im SO excited!! having weekends off and REAL time offf gives us time to ACTUALLY do stuff Iowa this weekend to watch Becca play soccer, Arkansas next weekend to see my best friends and grandma, after we go to Branson for a night. Then a retreat. Walk in Lawerence "Head for a Cure" all that jazz. It should be pretty fun.

Yesterday, Dr. Smith (my personal favorite dr i see weekly) did the teaching for the next round of chemo. I start around the 17th. and will most likely spend the week in the hospital....? Its a 28 day cycle, and I will do it 6 times. Yeah, your thinking about time now, aren't you? that March or April. hoping my counts stay up and I don't have to skip! thats the goal.

Thursday, September 8, 2011

A not so labor.... Day

It's been a few days. And well I finished round one of chemo!!!!!!!!!!! I'm two short treatments away from being done with radiation. Then i get a "break"?? I'm sure it can be counted if they take blood three times a week, and I still see the doctor every Friday....mbut a break none the less. And I've got it planned. Iowa. Arkansas. Perry, KS. Parttttyyy

My dear friends surprised me this weekend!!!! It was awesome! I was so happy to see them! Took them to lunch! They have hearts of gold! I cannot wait to go see them!!

My senior English teacher also came to visit! I so enjoyed her being here! I told my story. Laughed. Typocal bonjour fun times!! I was happy about it.
Monday we went to sana cali gone days. It was beautiful outside!! Loved it! And I was super happy to be out and about!!

*-*-* Gross alert*-*-*
Tuesaday mom decided she wanted taco Tuesday. So off to johnnys tavern we went! Well, yeah. I punched an ENTIRE glass of IDE water at my dad, cried about it because I felt so bad!! Then after I ate my hot dog...i threw up.... And cried. Again. I have never felt so bad in my life!!!!! Yeah..not fun!

We see the doctor tomorrow. It will be interesting to see the plan and what they have to say. Dr. Smith hasn't seen my sexy new glasses so it will be fun to talk to him.


-N

Friday, September 2, 2011

Number 6

For once I am not welcoming the long weekend.nit means only 4 days of radiation, keeping me until the 12th. I've been ready to ring that bell since I found out about it, like 2 weeks ago. I'm mostly ready for my 4 week break. I wanna see my friends, and do something fun!!!
I did, on the other han, finish round one of chemo today!!!!! We had the family over for dinner, and showed off my new glasses. It was good to have a full house. Doctor panicker told us today, she STILL wants blood three times a week, while on break. And we all know she loves me so much (??) that she wants to see me every Friday. Kinda annoying. So much for long weekends, and actually getting a break... The chemo nurses where sad to see me go today, and as much as I love becca, I was happy to go! Let's grab the 12th and ring that bell, and say goodbye to radiation for good!!!!! I will miss them all terribly, but maybe I'll go visit??? Who knows.
Hopefully mom and I will have a busy weekend. We have a funeral tomorrow, and then possibly lunch, and light shopping. Sunday is brew day around our house (gross) so church for sure, and then my senior English techer talked about coming to visit. Monday we may go to sanacalagon (?) days. Never been. Kinda hoping the weather will be good so we can go!! Busy but fun weekend, just the way I like it!'n

Wednesday, August 31, 2011

Wednesday comes again.

Well, only 7 more days, and I'm ready to ring that bell. No worries. I was talking to my teaches today, and one of them gets to go to Spain. Lucky!!!!!!! She told me she would just pack me in her suit case, love that.
Friday will be my final chemo in this round!!!!! Dr. Smith called today and wants me to talk to a new patient to tell him "what really happens at the cancer center" it's like a giant party?!??!?!?!? I don't think that's what he wants me to say but he won't be there so I can say what I want, but he says me a new kid will get along, so I am thinking I'll have a new friend. Yay!!
Grandma was here this past weekend and hung out with me on Monday! I think the family is coming over, this weekend, to help us eat some lasagna. Yummmmyyyyyyy!!!! And I'm not sure what else we will do, but it's a long weekend, so everyone gets an extra day!!! :)
I'm ready for my glasses, from dr. W, to arrive, I need a new view on the world!! Yay I'm ready to rock them! I'm also very ready for my month break. I'm going to eat yummy food with awesome people. Go to Iowa to watch my friend bec play soccer, and go to Arkansas to visit my grandma and best friends. We also talked about hitting up lamberts, because who doesnt want rolls thrown at your head??? And maybe a quick trip to Branson, I'll see what I can pull. Maybe we can even get rid of silver!! I see big changes in september, let's do this!!

Wednesday, August 24, 2011

Wenesday

This week is flying by!! I also can't believe it. Friday I move to s new room and they flip me over, I'm done with my back. Then 11 days, some blood draws, and a holiday l will be done! I will be sad to say goodbye to all the incredible people. Saddddd! This week began jccc classes, a political class, done for the week, time to work ahead?? Tomorrow we see dr. Wittacre so hopefully more good news will come our way!! Friday is party day with my sister. She took the day off for me. Fun times!!!!

Friday, August 19, 2011

It's Friday!!!!

Well, guess friday is fun day?? Today started bright and early with a doctor visit for dad..... Then a trip out to jccc for my placement test...after one frusterating call later we found out I only had to take the math..matter not being given a pencil.. I was given one and completed the math test..can't say I did fantastic.. But I did okay. Then we had a meeting at 11 with the most unhelpful person ever....so enrolled and books bought later, we were on our way. To eat "The Pizza Man" for lunch..yay!!!!! So good.
Then we headed to chemo. We saw Lavon and dr. Smith and they sent us upstairs!!! We got rebeka as our nurse..she's the best. Side splitting funny!! Loved having an extra break from radiation but missed my techs. Fun times!!

Tuesday, August 16, 2011

Tuesday, Tuesday, Tuesday!

Oh Monday was you average rainy kc day. Radiation meant blood and doctor day. We found out I have eseophigitious (?) and mom self diagnosed allergies leaving me with a runny nose. My white blood counts (WBC) where low last week so a very welcome dinner phone call left us with no more gfc shots!! Unless otherwise told!! WBC back up! We wll see how tomorrow goes..... The doctor(s) didn't say much. Takes magic mouthwash, that's about it. We are trying it.
Today went quickly. Did a double workout. Party!!!!!! Radiation also flew by. And it ended with a houseful of my dear friends. Before the jack, Betsy, and Lizzy leave tomorrow! All with family dinners before then! Adorbs! Lol
We also got a call from rad. That told us rad will be long tomorrow..... Maybe an extra hour? I may get to lay in my back? I don't understand. But I'll find out I guess. Every day is a new day!

Sunday, August 14, 2011

Weekend break

Weekends are fun!!
Saturday we went to the movies with christa and crew to seethe help! I loved it! I then picked fazoli's for luck!!! It rocked!! Then we had family time. Port is getting so big and laney is goofy! We got cake out of it. Thanks lane! She was very confused by my walker soooooo yeah.
Sunday we went to church. I took a nap. Mom ran to the fabric store. And cvs. Then I chopped my hair off. And we have pizza for dinner. Church people rock.
Getting the hair cut off was a highlight! I was so tired of pulling long chunks out of my hair. Corie and I are very excited to see what's gonna come in. Let's hope for dark and curly????!?!?!?!
My aunt and uncle got me a sweet hat and I can't wait to rock it. Mom also found me a scarf bring on old man winter!
Also dr. Smith said I should walk down the stairs backwards eyes closed.. And someday run backwards. Blindfolded. Yep. Working on that. My work out went extremely well today. We added the weighs and dad...(who wasn't as good) did it with me.

Thursday, August 11, 2011

Here comes friday

It's been an interesting and great week. Thus far
Monday went well! Tuesday was long. I laid on the radiation table for an hour with nothing happening before the doctor decided I needed a new face thing.. So after another hour I was on my way. I also got to have dinner (Sooooo good) with dear dear friends! It was normal so awesome. Bec and I told all of our rebellious stories from last summer.......
Wed brought a very quick treatment and after a collapsed vein (whoops) a blood draw. I also caused trouble! (so me) talked my techs into watching YouTube if time allowed.....because well the back of ymy head is rediculous! Lol. I hope they loved it. Cannot wait to find out. Then I had dinner on noodles and co. Party!! 9 pastas and 3 appetizers. Talk about full! As they called it today carb coma'! I was in one. But we rocked and LOVED it!
This mornings wake up came at 630 in order to get everything done. We had to go to KU and see dr. M and Connie. Amazing people. Mom got a car wash. Now we hang until radiation day 11! Look at me. Trucking along here. Maybe I can be the lady in he shirt today?!?!? Who says that...the lady in the shirt. So descriptive, when it's all women.

Monday, August 8, 2011

Day 8

Today was treatment number 8 of 31. Getting there illl get to ring the bell some day! Lol. I mean I'm a pro now so who cares, right? Monday is doctor and blood day so the wonderful Kim helped us out before we saw dr. Wang and dr. E. Dr. Wang asked about my eyes and tested those out. All in well in the oncology world. Today we laughed, I wore my sr. High camp shirt which is neon yellow, so I was already radiating... Didn't need them today.
We also had trouble getting the mask to fit. My head is getting bigger?? I don't know!
I told dad that the lead room is a time warp. It's like I lay down and I lose all concept of time. It seems like forever, it's not.. But on tuesdays it is, gotta take all sorts of photos. I move around so it alway takes longer. Tomorrow the goal is one shot. Yo not move around..as much???

Sunday, August 7, 2011

Sunday Sunday Sunday

What a great weekend!!! A break for everyone is alway nice!!
Friday was a very long day so after getting home Sam stuck around and then Celeste joined us for sone laughs and girl time!!
Much needed and very fun.
Saturday mom went with Michele to celebrate tax free weekend. Dad and I were left to fend for ourselves for lunch and then we all (mom, dad, Michele, me, porter, and becca) celebrated jays birthday with a very very yummy dinner at red lobster!! Sooooo good!
Then becca and I watched anastisa.. Or sang and quoted. You pick and just laughed. Also so fun! And much needed!
Saturday also brought a very unexpected phone call from my aunt Linda and uncle dale. They got tickets for mom and me to see Sara barallis and sugarland!!!!!!!!! It was incredible!
Sunday, First we went to church, and then christa and jeff hung out for the afternoon! I have a beautiful new wall decoration (thanks christa) and then mom and I rocked sprint center. We tried not to get to crazy, but. I got my walk in, with no walker (look ma no hands!!!) :)
Monday enters week 5 out from surgey number one and full week number 2 for radiation. Let's do this. Y'all better pack a lunch and get ready we got butt to kick.
-N

Friday, August 5, 2011

2nd day...

chemo!!!! day two. we did it. lonnnnnggg day but we did we did it. we had radiation at 1130. and it was a fast day. with a blood draw. in and out. we had enough time to rock bbq for lunch. good times. sooo good. then we headed to wait at the cancer center. we saw dr. panicker. and she was super impressed with me and how much better i am just in the last week. yahoooo!!! I had sam and ean along for the ride today. it was....interesting. and we so played family feud while someone was watching it. it was awesome. we again waited longer for the med than we did for it to empty. good times. but fast. we got home around 430/ it was a long day. buut we stopped by the learning tree on our way out this morning. and it was so nice to see everyone, and be in the store. i actually miss working. lol. funny how that works out.

dinner tonight was goodcents with sam and it rocked soo good. mom and dad went out. enjoyed. so good.

i get to wash my head today, for the first time since i saw dr. pollock so off i go to get clean. gotta fight germs so i can chop my hair off this weekend. you know. normal.

Thursday, August 4, 2011

thursday!!

hey everyone,

today seemed like a longgg day, but great. we spent the day at ku. sooooo i rocked my new ku shirt. they loved it. no lie. follow up appt. with dr. pollock this morning. her new building is beautiful!!! i had a ct. and was told nothing but good news from it. after being examined by dr. p's nurse she came in. i missed her actuallly. lol we hugged and then she examined me and told me that the stiches got to go!!! oh yeah!!! so happy. she gave me some rules for showering, AND cutting my hair. i will see her again for a mri 4 weeks AFTER i finish this round of chemo and radiation. so it will be a while. :( im sad about that. i like her. buuutt i found out today she is from poland. how cool is that??? sooo amazing. so much history. such a great time. lucky. lol. or not. no wonder she came here to rock the world.
my best friend is HOME!!! she spent the day with us and get to rock chemo round two with us. we are so going to play games. we are crazyyy. ao fun.
now that we were given the a okay, mt hair is getting chopped. i cant shave it, due to a risk of infection, so short i go.....this weekend hopefully. im over it. the hair thing. pollock really really doesnt want to see the hair go, but its going. for sure. lol.

i also got to get blood drawn, awesome time. ANNNNDD visit the lipid clinic. they were so happy to see me. but i get to see them next week, but i have to make a tie blanket. we promised. lol. love those folks. lol.
so today, gets a stamp of busy and awesome.
tomorrow chemo day two. and more radiation. rock that. lets do it.

Tuesday, August 2, 2011

Monday dinner

Wellllllll Monday night dinner brought a feast! Tacos and fruit and brownies oh my!!
Radiation is going great 28 more!!! So now like 26! I'm much better at hitting the face hole which makes everything better!! Lol great! I am real figetty so Tuesday was a long one. My first blood was taken. Lets hope for good tbc...???CBC?that's it. CBC. 3 times a week. Suppppppp and I see the doctor dr. Wang (Wong) sees me. He didn't say much. Looking good that's about it! Good work.
Dinner was great!! So much fun. I missed Kara in my life so it was awesome to see her even if I was a peacemaker

Sunday, July 31, 2011

A break

This weekend was so nice!! Saturday we chilled and my friend em and her mom came to visit. So nice and I got a beautiful gift from Sam and em.sooo sweet. Sunday we rocked church. Jen dud an amazing job and then the fam went to lunch. It's weird to see your face places
Then becca and Kyle came to visit. I got the spec scoop and we watched funny you tube videos talk about laughing. Mom christa and Michele went to trader joes so pot pie was dinner!!!! Pie is on it's way from very nice people.
Tomorrow begins week two with christa and Kyle before radiation so mom can work!!
Sam comes home wed so Friday I'll most likely have ean and Sam for chemo.
I see pollock on Thursday before radiation. So it will be nice to hear what she says!!!

Saturday, July 30, 2011

One down

Well so much for being on time. I tend to pride myself on being onetime to everything!! Not anymore!
We were late to chemo day one but it was so not our fault!! Chemo took a grand total of 15 min but there was a DVD player for when treatment get long. We just quoted them. Napoleon and groundshog day. If you have never seen that bill murry movie you now have plans feb 2 you are also going to need an iced angel food cake and a big mouth!! haha
I sonehow get the best nurses on the planet and then somehow indirectly know their life! It's awesome! Rebeka?? May just have to be my friday nurse!! What a lady!! She gave me brownie points because because I own a lime green ku shirt.. Haha even if I did feel a little dirty In it. Sorry ku.....
My biggest fear was my silly port but leave it to the pros and it's no problem. Guess water isn't over rated after alllllll.
I chose pizza for dinner and then ate like half the small pizza alone!! We can thank my steroid for that!!! It was like a cow!
Now that day one was Such a breeze I say bring it on Friday!!!

Friday, July 29, 2011

Day one

Oh my worries were exactly worries. No fun laying on my stomach but not bad like I thought. I missed the face hole so once my mask was on my face quickly became a problem. I laid there for what seemed like forever as they positioned me. Did you know half your face can fall asleep??? I will be a pro by next week.
I Start chemotherapy today and that's a Friday funday thing I get to be an afternoon lady. Wanted to make sure my walker is the only one?!??!!!!!! Haha. I have no idea what to expect for today because everyday is new. Once I do it once I won't have to fear it any more!
My incredible mom brought me some very yummy frozen yogurt last night! And the owner wants to do something for me.. So I'm sure I'll get more.. Score!!!! I also got a non hospital hot dog! It was amazing!!!! My dad!!!!!!! That guy cab grill even when it's 104!

Thursday, July 28, 2011

People are amazing. In our world it's so easy to forget people are so nice!!!  They just are. They threw a benefit for me and the line was out the door people waited like 30 Mins for noodles!!!! Or just donated. Incredible!! A few of my icu nurses even came. I told  them I'd be back to dance!!!!
I was beyond happy I got to go and eat, my family too we saw so many faces we have missed in our life and got to tell our funny stories..., I was cute and little once. And I am ornery. Maybe that's why people tell me to be good. Thy knew little me. Haha
Then we had family tine and christa and Jeff counted. Mom had some port tine. Dad and Michele and I opened gifts and cards. It was so good. We we're silly. Go figure!!!  Then very late the 4 began their treck hone!
Today (thursday) dr, Kim has given me the okay to start radiation. At 2.. So thats fun. Today and tomorrow I do something radiation again... I think.... I listened really well. I just go. I'm sure I i will have great stories for the weekend...
Everyday is an improvement... Walking. Moving. All that.
One of our GOOD family friends does PT so she came and we worked...out and she left her workout ball so mom and I can do stuff. I haven't done the crawl again...yet. just some butt circles and standing.
Right now I get to retrain my brain so working out is like standing up (which I can do alone now!!!!!) and standing in one foot!! It's great!
Today so gets great status!! I got to see so many amazing and wonderful people.. And I got to  hang out with my favorite people!! I don't feel so out of touch like I did before!! Finally!! Yay Wednesday!!!!!!

Natalie

Sunday, July 24, 2011

Something else

So I guess I skipped an important thing.
A couple weeks before everything (tubing and camp) I had a dream. Yeah. A dream. And in my dream. In my dream they informed me of My tumor. I then had to tell my mom and then I had to tell 5 people even though ideally didn't want to. So I did. Very angrily. Against my will. 
 was the weirdest dream ever. I beat someone up. I yelled. A lot. It was very odd. And then i woke up. Idk. Weird
Sorry if I seemed angry. I don't mean it. And most of the time I don't really know what to say. 
Today, (Sunday July 24th) I'm feeling great. Working on a cleanse. Not recommended. It's a no walker day working on balance is good stuff. Lots of laughs. Very good. They say it's  some of the best meds. 

A book they say

a book, and I just typed a whole thing out and then pressed the wrong button, so if this gets angry. This is round 2, whoops. They say that they can blogging about how well they think I am doing but only I really know. And I, the only one that can feel it. So they want a book about how I"feel" since Im so good at thT. You throw words like indiaan rug burn out and people get mad..I guess
I don't fel like have much to say I just tweet it all.that should Be a book, my crazy tweets. no one read it
I guess I should say that if you hate me in a week that's okay. I can get  annoying. It happens....
I will also will say I'm a little happy it's me. I would be freaking out if it was someone else. Seems very unfair and it is but ehhhhh. It happens. I made a choice so let's talk again when I really hate this and REALLy get mean and demanding... 
Some how I got cooler laying in ICU what?????????? Possible? Why???? Who do you people think I am?? I must of lost that somewhere. was there a memo?????
I feel like I should say sorry I am soooooooooo inconvenient for everyone. I mostly wish this would go away for my family. My sisters and I have never been so close but I'm watching this tear my parents apart. I hate it. I just sit and lay and I want to help. Somehow I just don't know how. So for now I just do what they say. It's easier and better for everyone.
I am stealing peoles lives. Worst part, I don't understand why they do it. What did I do for this status???

A month ago I was crazy me. Who I like, a lot but some peole don't that's okay
I was the most healthy crazy kid ever. Now look at me. I'm THAT kid now, arent I??? I sure don't feel sick. Helpless yes. Sick, no.
I refuse to let this define me. I told someone my "cancer" is a purple ball. I have placed it in a hoop, and unless I have to I'm nit touching it. It will NOT define me. I'm kicking it's tail. You can't get rid of me. Sorry. Lol. 
My mom says I talk more but I think just have the ears now. Lol didn't before.
Also They say I'm funnier but I have time to think of the jokes. Now. What else am i doing?? Well writing a book. I guess....